![]() What are your approximate fixed monthly expenses beyond food? But I’m deeply grateful to have access to some emerging therapies, as many of my fellow patients do not. Since these illnesses don’t have cures and management treatments are ongoing, our financial situation isn’t likely to change. People have developed similar illnesses after surviving COVID, which, hopefully, will inspire more funding and research. We must pay out-of-pocket for things like my neurosurgeries (performed by out-of-network physicians) and my bone marrow stem cell treatments. I have ME/CFS (commonly known as Chronic Fatigue Syndrome), MCAS (Mast Cell Activation Syndrome) and the genetic connective tissue disorder EDS (Ehlers-Danlos Syndrome)-they often cluster together. We have spent every cent of our savings and 401(k) on my medical tests, treatments, and trips to see specialists in the nine years I’ve been mostly housebound. How much money do you have in savings? $0. How often are you paid? My husband is paid biweekly. How much is one paycheck, after taxes? $3,300 ![]() Since I’m not able to work full-time, we are a single-income family. What is your annual salary, if you have one? My husband is a molecular biologist working in biotech, and he makes $128K.
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